A trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophyWe do this through a comprehensive and sensitive package of support, managed by real people with actual experience of the many aspects of living with a leukodystrophy. Our information and services are reviewed regularly by our medical advisors, staff and our Steering Group, made up of beneficiaries representing the diversity of leukodystrophy as well as the many phases and characteristics of individual conditions. We undertake various projects to improve the quality of, and access to, treatments for leukodystrophy through our collaborations with the NHS, specialist medical professionals and scientists, peer and umbrella organisations, and corporate with a common goal. We support Informational Research which we believe is vital for the development of medical research. This is an area we have considered at great length with our Board of Trustees, scientific advisors and pharmaceutical companies, and we are confident that the work we fund to drive forward best practices in treatment and prevention as well as the support we provide must continue to be our focus.