IIH UK provides sources of information and support to those with Idiopathic Intracranial Hypertension.

IIH UK is a registered charity run solely by volunteers. Founded as a voluntary organisation in 2008, everyone who works for us either has IIH or cares for someone who does. We became a registered charity in England & Wales in 2012 and in Scotland a year later. Having no paid staff allows us to spend our funds on achieving our aims as set out in our constitution. Our enthusiastic team of ever-changing volunteers has enabled IIH UK to grow and we are busy providing information, promoting awareness and supporting people with IIH, their families and friends. We are primarily a support charity but also do research and offer small research grants to cover patient travel which allows people with IIH from further afield to take part in IIH trials