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Charcot-Marie-Tooth UK

Charcot-Marie-Tooth UK

South West

We are the only national charity supporting people affected by Charcot-Marie-Tooth disease, an incurable, progressive neurological condition.

Formed in 1986, we’ve spent the past 30 years, giving support, advice and information to people affected by Charcot-Marie-Tooth disease (CMT), by means of a helpline, email, social media, through publications, website and events, bringing people affected together – especially for young people affected by CMT. Advice also includes all the other myriad of issues that living with a disability brings. We also run awareness campaigns, not just to the general public, but to medical professionals, and also help with funding research where funds allow. CMT is a neuromuscular condition, causing major issues with walking, standing, balance, with hand function, and causes chronic pain and fatigue. It is progressive and incurable.

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Charcot-Marie-Tooth UK

QLGD001 Supporting You!

Supporting You!

Help us provide support for everyone living with CMT in the UK, by improving our support services, and raising awareness of CMT.... Read more