Our "Funding Fridays" campaign will run for 6 weeks until the end of August 2024.
A kind friend to the EI Cure Project has offered to match donations up to the value of £5,000 until August 31st, so every time that you go out for a drink, please think of us, and donate the cost of a drink or two to our cause. When you do, we'll double your donation. HOORAY!
A donation to the EI Cure Project goes directly to research to help us find better care and a better quality of life for babies, children, and adults living with Epidermolytic Ichthyosis (EI).
EI is an ultra-rare genetic skin disease that causes painful blistering and skin fragility, alongside skin that thickens so much on the joints and flexures, that it can limit movement and cause permanent disability.
There is no cure for EI, and it is only possible to try to manage symptoms with long baths, often painful exfoliation techniques, wound care, and with the application of many different creams. Most people with EI have to spend between 3 and 5 hours every single DAY caring for their skin.
So the next time you're out for a few hours having a few drinks, please spare a thought for those affected with EI, and know that the average night out takes the same amount of time that someone with EI spends caring for their skin every single day!
Your donation to the EI Cure Project means that we are one step closer to allowing the next generation of kids with EI to spend less time on skin care, and far more time at play!
Please join us, and donate to our Funding Fridays campaign TODAY!
Thank you so much